meet mikey. he has MLD.
On our spring covers, you met Michael Warechowski IV, the only son of Marietta residents Katie and Mike Warechowski. Michael was born a perfectly healthy, smart little boy who reached all his milestones. Katie and Mike had no idea anything was wrong until he still couldn’t walk by age 23 months.
After extensive tests, they received the unbelievable news that their son has Metachromatic Leukodystrophy (MLD) and only a few more years to live. This 11-Alive feature tells their poignant story (grab the tissues and click to watch).
MLD is a rare neuro-degenerative disease that affects the brain, nervous system, and muscles. There is no cure; it is fatal. Most kids with MLD live to be about 5 or 6. Since his diagnosis on Katie’s 31st birthday (March 27, 2012), Michael has lost all of his abilities: he cannot talk, eat by mouth, sit up or play. He is fed only through a feeding tube, and he is heavily medicated, as MLD is very painful.
Katie and Mike own Fitness Together in East Cobb and strive to provide everything Michael needs. Unfortunately, they’ve been denied government assistance for Mikey’s medical care and their medical bills are outrageous.
They take a lot of time off work to care for Michael and spend as much time as they can with him.
So, LBD|LRW is teaming up with community partners and individuals to host this event:
The Mission Fore Mikey Golf Challenge ~ March 21, 2014
Where: Cobblestone Golf Course ~ Acworth, GA
What: The Mission Fore Mikey Golf Challenge is a viral story-telling fundraiser leading up to a celebratory golf event to help offset ongoing medical costs for Mikey’s care. The “challenge” is for teams to get the word out to as many people possible sharing Mikey’s story and gathering donations (pledges) over a three-week period leading up to the event (kind of like a walk-a-thon or Komen 3-day walk).
Details: The event day schedule:
11:45- Announcements and rules explanation
Noon- Shotgun start
5pm- Awards Presentation and Mellow Mushroom pizza and more fun!
To Play, or Donate: The donation level to enter a foursome is $500. To enter your team or ask a question, please contact Graham Cossick at firstname.lastname@example.org.
Or, to simply make a donation by check or credit card…
CHECK donations are mailed to:
Mission Fore Mikey Golf Challenge
6110 Cedarcrest Road
Acworth, GA 30101
*Please make checks payable to “Michael Warechowski” and put “LBD/LRW” in them memo line.
CREDIT CARD donations: Visit Katie’s blog for Mikey at mikeywiv.wordpress.com and click the “donate” button on the left for online credit card donations. If you saw this story through 11 Alive coverage, please put “11 Alive” in the memo line. Thank you!!
Our Corporate Sponsors: A HUGE thanks to…
Title Sponsor: 7 Mindsets
Victory Sponsor: Wellstar Health System
Mellow Mushroom Kennesaw (Chastain Rd)
All Seasons Landscape, Event Sponsor
Mobile Associates, Event Sponsor
CIS Construction, Event Sponsor
Pro Active Payroll, Event Sponsor
Northside Psychological, Event Sponsor
PHIIT 30, Event Sponsor
AND Raffle Prize Sponsors: The Magnolia Room, David Douglas Diamonds & Jewelry, Diamonds R Forever, Love Street at Cedarcrest and Heart & Sole, Melissa ~4~ lia sophia, Invigo Day Spa, Back By Popular Demand Consignment, Dyer and Posta Salon, LifeSmiles at New Hope.
music for mikey
This song was written and recorded for Mikey, inspired by his courage and journey. Please listen (stream the full song with SoundCloud player below) and share to support this lil’ guy. The song is also now available for download on iTunes for 99 cents (link below), with all iTunes download proceeds going directly to Mikey’s care.
Playgrounds in Heaven (Mikey’s Song) – Single
Credits: A HUGE THANK YOU to the following musicians who donated their time and talent as a special gift to the Warechowski family…You guys are AWESOME and have such BIG HEARTS…this could not have happened without you!
Mason Douglas – vocals
Daniel Dennis — drums
Philip Pence — bass
Danny Crawford – rhodes and strings
Corey Pearson – piano
Jeremy Medkeff – acoustic and electric guitars,
Justin Moses – fiddle
Playgrounds in Heaven (Mikey’s Song) is written by Graham Cossick. ©Graham Cossick 2014